Submitted by Shon on Mon, 02/02/2009 - 8:19am.
Well it's the first week of February and Emily is doing pretty good. She had clinic last Friday. She grew and gained weight which made us all very happy. Her PFTs were still a little low, but they we high enough for her to stay out of the hospital. We are all very proud of Emily and she maintains her positive attitude through all of this. We love you Emily!